BELYNDA DUNN
Age: 50
Belynda
Dunn is a mother of two and a grandmother of three, who was
a practicing RN for many years. In addition to her HIV infection,
Belynda is currently waging a struggle against hepatitis C,
which she believes she contracted during a blood transfusion
when her son was born in 1968.
Belynda
is also a recovering alcoholic who learned of her HIV status
through a workplace testing program. She believes she may
have been infected by her fiancé, who abruptly broke
off their engagement, and left town. Hearing of his death
from AIDS, she decided to be tested.
Her
health care work brought her to AIDS Action Committee in Boston,
and she became a full-time staff member after her diagnosis.
There, she found mentorship from Pernessa Seele at Balm in
Gilead, an AIDS service organization focusing on African American
churches in Harlem. Belynda founded Who Touched Me Ministry
in Boston. Finding her voice through her rage and honesty
Belynda called on the leaders of the Black churches to open
their doors to all parishoners in their community; the addicted,
the homosexuals and the HIV- infected. Through Who Touched
Me Ministry she challenged the churches to break the silence
and shame that was decimating members of her community. Now
churches provide services to people with HIV within the community,
from driving parishoners to their doctor's appointments to
bringing them home-cooked meals to their door, the churches
are ministering to people in ways that would have seemed unimaginable
just a few years before.
She
is in no danger of death from her HIV. Belynda
suffers from end stage liver disease, which is a result of
hepatitis, and she will die without a liver transplant. She
is currently awaiting an appropriate liver donor. Belynda's
insurance company denied coverage of the transplant as "an
experimental procedure", and she asked the state of Massachusetts
to review of the decision and to overturn the denial. The
Massachusetts Office of Patient Protection denied her request
on July 19, 2001. On July 20, Boston
Mayor Thomas Menino announced the creation of a fund to help
people like Belynda who have been denied transplant coverage
by their HMO. Dubbed the Life Fund, it will allow Belynda
to have the operation she desperately needs and pay for similar
procedures in other people who need lifesaving treatment.
$400,000
has been raised so far for the surgery. More information about
the Life Fund is available on the web site of AIDS Action
Committee (see Resources).
Belynda is an active churchgoer who originally rejected traditional
therapies in favor of alternative treatments and prayer, but
when diagnosed with hepatitis C, she began AIDS cocktail treatments.
A combination of severe side effects and an increasingly compromised
liver lead her to drop the treatments while she awaits a liver
transplant.
Belynda
is described as a woman of truth and eloquence, who is also
saucy, honest, and tenacious, although she currently is experiencing
dementia as a result of her compromised liver.
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